ALMOST HOME

Yikes! Still here. Was hoping to get home on Sunday when I finished my anti viral nebulizer (21 doses over seven days), but haemoglobin dropping smartish and I need blood. So have to wait till I can be topped up before I can go home. In fact hospital would have sent me home yesterday, but I asked to stay in as I am feeling to weak and breathless to cope alone at home. With luck transfusion will happen this afternoon and I will get home this evening. Then I have to be back in HOP clinic tomorrow morning for a bone marrow test. Blimey, it's exhausting. 

The rituximab was finally granted approval and I received my first infusion of that last Friday - luckily without getting any nasty side effects, which are often quite common. I have my second infusion this Friday on the chemo day unit. It hardly seems worth going home - I am going to be in the hospital everyday as it is. 

Miss my garden, and I reckon all the poppies will have come and gone...Luigi and I speak everyday and exhibition going well. This is just a quick update to position myself geographically as lots of people wondering if I have made it home yet. Oh, and also to say that my friend Camilla completed her triathlon in one hour 46 minutes and is on course to raise £500 for leukaemia and lymphoma research, which is brilliant. Check out her Just Giving page to see if she has made it.

Will be back before too long, hopefully with some brighter news. In the meantime my cold is so bad I haven't been able to taste one mouthful of hospital food, which I guess is a blessing! Ciao tutti. tch xx