Still at kings. Was moved off the private ward and onto the haematology ward on Sunday. Apart from better food and free newspaper there wasn't much difference. In fact feel safer on this ward - better to be looked after by specialist nurses. Also this room has a window with a square of blue sky! I can look up and see scudding clouds, the occasional plane and this morning I saw a handful of swallows darting about. That was a treat!
Two days left of nebulizer. It's exhausting work. Have to have it three times a day, 2.5 hours each session. Nobody allowed in the room while it is being administered. My cold is foul and making me feel pretty lousy. My haemoglobin is dropping again so will have to have yet another transfusion in the next couple of days. Slightly alarming that this haemolytic anaemia seems to be getting the upper hand over the steroids. Still waiting for the ritaximab to get the funding... However, still on course for discharge at the weekend, providing no hiccups occur. So all fingers crossed please!
My friend Camilla is doing her triathlon on Sunday. This is a final shout out to anyone who would like to sponsor her - every pound helps. There is a link to her sponsorship page under the blog entry headed JUST GIVING.
Meantime I am in contact with Luigi daily. I can hear the vaporettas chugging past as he stands on the edge of the Canal Grande talking to me. I hear the water lapping at his feet and snatches of Italian conversation as people pass by him. I would love him to cook me a big bowl of saffron risotto. I would love to see his face appear round the door of room 14. Dream on. Sunshine at least. Makes my room very hot. There are no fans and the air conditioning is broken. So I lay very still on my bed, while the sun moves round and fills my room with bright and shadows. Luisa went to the house and watered the garden yesterday. She tells me my salmon coloured poppies are out, so too yellow scrambled egg daisies and the second lot of clematis, with big pink and white heads, has started to flower. Typical! And I am stuck in here and unable to see it all...
Ok, going to stop writing as am strapped up to the nebulizer as i am doing this and its all too exhausting. A quick update at least. Internet connection is terrible, so not sure it this will get published.
No email for three days... for some of you this would be a blessing, but when relying on it for contacts and conversation, its horrible not having access. Big Ciao to you all, thanks for messages and texts. Hopefully next entry will come from home. Waving and sending love... tch xxx
9 comments:
Fingers toes and even my nose crossed for early escape. Ianx
Hoping your next blog is from sunny Forest Hill. All the southern hemisphere Holmsies send their love.
I'll send you an email with more news and photos of the house xxx
Ciao Tessa..Un grande abbraccio e ci vedremo a Venezia un giorno! Dobbiamo! Io vivo a Sanremo ma anche io amo Venezia....Graziella
Hi Tessa
I really enjoy your posts and your positivity puts me to shame. I see that you should be out for the weekend and as Jan has already said don't forget "G taxis" - just a text or phone call away. Thinking of you. Gerald
Hi tessa so sorry that i didn't get to see you at melanie's house last week, we missed you. Saw Rose being installed as Chancellor of UEA last night - don't know if Richard was there - too many people! She didn't have to do much except try and look dignified with a funny hat on her head....Take care of your self. Lots of love Lisa xx
Hi Tessa Sorry it was my face round the door of number 14 and not Luigi's but it was really good to see you even though I felt like I'd been in a sauna for an hour and a half you need a medal!!!! Hope the Ritaximab goes smoothly without too many side effects and you can get back home again when the time is right! love and hugs always Kate xxx (see you again soon)
Hi Tessa
Show season at college is starting. Tim Hutchinson has done lovely colourful vinyl graphics all over the front windows. It casts light inside that looks like a permanent sunset. Don't know if this will work but here's a link: http://www.facebook.com/photo.php?fbid=10152867621070611&set=pcb.10152867621630611&type=1&theater
Tony
Hello my lovely, just returned from hectic selling trip at Newark. Mega driving 5 hrs each way & lots of carrying boxes. Gone are the luxurious days of selling in my comfy shop but being active will keep me fit ! Good Luck with the Ritaximab and hope that awful cold clears up.Big love.KXXX
Hello lovely Tess - really really hope you're home by now and that the Retuximab turned up and has helped. It didn't have horrid side effects for the people I know who've had it so I hope that's true of you...was in Wales and in sun this w/e (unusual combo in my experience). Met some brilliantly energetic women and thought of you and of course Kay.
Still thinking of you. Much love, Tina x
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