Thursday, 16 May 2013

UNEXPECTED VISITOR

Ciao Tutti...

Thrilled to write that Luigi flew back to London yesterday! What a surprise! He is here for a few days to sort out stuff for an exhibition he is hoping to organise in Venice at the end of the month. Lovely to have him home, even for a short time.  Next week I will be alone again. Had eight days without him. The house is so quiet. And I miss him big time. Quite hard work being alone but managing.  It is amazing how quickly one grows dependent on someone. But rota of friends to visit has worked a treat. Thanks to everyone who has come by. Some delicious meals. Its also quite a relief not to have to speak all the time in Italian!  Starting to miss work.  Its Havelock Open Studios at the moment. I had hoped to participate, but impossible. Just not enough energy to get work together.  Do not want to turn into a couch potato but find myself watching a lot of afternoon tv - most of which is dire.  Managing to do daily 'roundabout exercise'. 6 circuits the other day. Definitely feeling stronger.

Hoping to make a visit to the garden centre in the next couple of weeks to add a splash of colour to what is still basically a very green garden.  My clematis is almost there - full of buds - but needs some sun! Poppy heads starting to come up too. Wild life all still flourishing. Robins busy nesting. Woodmouse out every evening, scurrying about and munching on bird seed.  However, I have a house mouse in the kitchen, which I don't feel so fond of... have tried humane trap, but its hopeless, so have had to get an old fashioned wooden mouse trap - complete with cheese - maybe it will just get the message and leave before any harm is done...

Pleased to report that the HOP visit on Tuesday revealed a reasonable set of blood results - everything going slowly up again - after a couple of wonky readings. For some reason my platelets started to drop the other day (anything that drops sends me into a spiral of panic), but have picked up a bit, though still below normal.  I had a blood transfusion 9 days ago - the Auto Immune Haemolytic Anaemia still munching my red blood cells - but not needed another one since and my haemoglobin reading is a bit healthier - though still don't know if the steroids will sort out the problem. Not sure how long the consultants will wait before they decide whether or not I need the Rituximab.  I hope the steroids work. My poor body is so stuffed with medication - I can't bear the thought of more stuff to be pumped inside me.  I am back to the hospital tomorrow, this time to the chemo day unit, to have another infusion of something called Cidofopher (definitely spelt wrong), which is supposed to help with my bladder and the BK virus. 3 hours infusion time.  If I'm lucky I'll be home by 2pm.

Fergie gone. End of an era at Old Trafford. But a good way to go out - holding high the 13th Premier League Cup.  Scholes gone too.  Hope Rooney stays.

Off downstairs now to make a cup of tea and get outside for my daily walk.  Hope everyone well. Special mention to Somerset /Devon posse who have had to endure snow and gales over the last couple of days. They say we are expected a "flaming June". Lets hope its true. Greetings round the globe. Catch up with some of you very soon.  tch xx

3 comments:

Lisa said...

What a lovely surprise to have luigi home for a little while. Very impressive to hear of daily exercise. You are probably doing more than this old bureaucrat....Anna's last day at school today (she's going in for GCSEs only after this) end of an era!! V cold and windy here. Surely the sun will come. Starting countdown to a trip to Cuba at the beginning of July. I know your long haul is continuing - but there is clear progress Tess - hope I see you soon. Love Lisa xx

Unknown said...

Good to hear you sounding brighter, and that you feel stronger, what a lot your poor body has to contend with and how amazingly strong it is. Had the wettest day ever yesterday really biblical! Trying hard to garden but hopeless. Greenhouse is doing well. rocket, coriander, toms cues, and strawberries and more, hope we get a summer soon. ianx

kerry_holmes48 said...

Glad to read a cheerier message. So nice that summer is on its way for you. Winter settling in here. Days are still sunny but nights are getting cold. John in Perth this week and it's the first time I've been alone in my new house. Now that my darling dog Saffy is no longer with me, there's no one to bark at noises in the night (usually possums or bandicoots).
Boys are well. Sam Denise and Elsa coming for a visit mid Juns. Sam is almost ready to publish a digital edition of the Great Gatsby complete with illustrations and popups.

xx Kerry