Sunday, 6 January 2013

CLIMBING LADDERS

Woo-hoo! Neutrophils climbed up to 0.97 today. White cell count up to 1.56. Fantastic! Don't want to count chickens etc, but things looking good. Hemoglobin and platelets dropping frequently, so having to have regular blood and platelet transfusions. Last night I had a reaction while having a platelet transfusion, which was very sudden and rather scary: stomach ache, fizzing lips, dizziness, red itchy body rash, hot burning skin and an inability to breath through my nose... It was sorted quickly with a shot of steroid and antihistamine. Hope not to repeat this experience.

Hit by big waves of fatigue. Even walking to the quarter deck to see the park is hard work. Some days I am not able to do it. A shower is enough. In fact a shower is exhausting! Still troubled by nausea in the morning. But still keeping a good appetite. Homemade soups everyday, filling me with vitamins and goodness. Luigi and I are playing lots of cards. Lulu and Julian came for a visit today. Oh yes, the outside world... Amanda came in two nights ago and gave me another reflexology sent from heaven. I fell asleep...

This week I will get the results of my bone marrow and third chimerism. This should give a clear idea of what is actually happening and confirm that grafting has started to take place. It is a difficult time to wait. Especially as my counts are going up. I am full of glee, but have to hold onto it for a bit longer yet. I don't want to jump ahead until everything is confirmed by the consultant. It really is still one day at a time (sweet Jesus).

Short and sweet tonight. Too tired. Hard work just tip-taping. Feels like I am stuck in glue.
Hope everyone well and happy and still keeping up with all those fine new year resolutions.
Big wave and hugs to all Australian cousins (wherever you are!) I hope the bush fires in Tasmania haven't caused too much damage - and everyone safe. A special hallo to everyone in Somerset. Between you all, there is quite a West Country posse. Snowy Cleveland, thinking of you too. Love to everyone everywhere. You are all part of my armor. Links in my chain. Thanks. Back soon tch x


8 comments:

sarah cuming said...

Hi.. Goodness thats what we wanted - fantastic work Neurophils. But I do understand your caution. Keep eating the soup..
looking forward to seeing you. Sarah x

Anonymous said...

Soup is always good, said the Crazy Soup Lady. ALWAYS. Mine for this week is from one of Delia's cookbooks -- aptly titled "Soup" -- and is Carrot and Coriander. Has he tried that yet?

Much love, and Zippedidoodah to the cautious good news. Now off to bed and on to the next week. (And in case you wanted another Cleveland Weather Update, the snow is melting, and we will have warmer weather and RAIN late this week. Thank goodness! This deep freeze has been killing me.)

jules said...

Love the picture again - but how is it I can see your Mum in the face?!!Very bizarre!
Good old neutrophils glad they are heading in the right direction again - hope the increase continues.
Everything crossed for the graft result.
Thinking of you
Hugs
Jules xx

Lisa said...

I want a blue spotted dressing gown! 2013 going well so far! Slurp that soup and keep building neutrophils.

Love Lisa xx

KAY said...

Count me in for another dressing gown ! Good news with forces rallying for your neutrophils to increase and fight any baddies.Sending loads of love. Kxxxx.

Anonymous said...

Hi Tessa

Still thinking of you and wishing you well

Diana and Cyril

Lulu said...

Good news wonderful hurrah! I am wearing my blue spotty dressing gown that Julian bought me for Christmas thinking of you always lots of love Lulu and Julian xxxxx

tony c said...

Love your dressing gown picture too!! What a lot of talents you have. Fingers crossed you are still heading in the right direction.Saved by soup maybe:)
Trying to get back to normal here.Joe back to school yesterday Gabriel to nursery and Camilla to work now. Been a long break which included walks up mountains in North Wales around New Year.Still beautiful up there despite greyness and rain.
My mum's in hospital and very ill.That's occupying me and my sister a lot.Can't believe she is going to survive for much longer.I think she's had enough and to be honest at 91 that's probably OK.
Thinking of you always.
Tonyxxxxx