Dear All,
very quick update as I am shattered. Disappointing blood results yesterday. My white cells and neutrophils have gone through the floor - from 4.66 and 3.86 respectively (on Saturday) to 1.66 and 0.91 yesterday (Tuesday). Haemoglobin and platelets seem to be holding their own though. I was expecting a fall, as I have not been having G-CSF injections for three days, but was a bit thrown (ha!) by the such a huge drop. I had another G-CSF injection yesterday - so we will see tomorrow, when I go back to HOP, if things have stabilised. I do hope so. I get very panicky when my neutrophil count drops. I need those babies to be self sufficient.
Will also be strapped to a nebulizer machine tomorrow for half an hour. Stem cell transplant patients are at risk of some nasty lung infection called PCP so in order to minimise the risk I will have to have monthly nebulizer sessions. Tastes horrid apparently. Oh dear.
I still struggling with my daily intact of tablets and medications. Some days worse than others. Today bad. I have had to order a weekly pill box to keep account of all the stuff I have to be taking. Its easy to get confused - forget or double-up. I have been in bed most of the day resting up from an exhausting day at the HOP yesterday - lots of slow walking up and down miles of hospital corridor. 10 vials of blood, weight, height, urine. Low on magnesium - so more tablets to take. Like chewing chalky dusty cardboard. Almost the straw that breaks the camels back. I have to break them up in order to get them down. 2 become 8.
Fingers crossed that tomorrow counts have climbed back up a bit. One day at a time.
back soon. tch xx
3 comments:
Hi Tessa,hang on in there! I expect there will be many ups and downs along the way but I'm sure like me everyone will have their fingers crossed that your counts keep climbing and the little babies learn to be self sufficient(they have a great teacher in their new mum after all).
Keep taking the tablets!!!!
love and hugs as always Kate xxx
Have everything crossed for increased levels - left Arian at home this morning with her paws firmly crossed!
Love and hugs from here too Jules xx
One day at a time - so easy to say so hard to do - but you will because you are an amazing fighter and I can only send love and positive thoughts.
Px
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