Monday, 24 December 2012

DECK MY DRIP STAND...

Quick Christmas message to everyone to say hope you have a merry time, full of feasting and fun. Hope too, all uk blog-followers will mange to remain dry and not have to spend Christmas Day in wellingtons bailing out bucket loads of water...

Update from Room No.9 is that I didn't need to have either procedures today. Good Christmas present! Possibly may have to have them further down the line, but for the time being bye bye colonoscopy and endonoscopy. Sounds like a pair of terrible twins. My consultant informed me today that it looks like grafting is already taking place. Highly unusual for a double cord blood transplant to graft so early, normally takes 21 to 35 days. I think: wow, all those positive vibes and prayers and candle lighting is really doing the trick...I also think: eek! panic! why has it happened so quickly, does that mean there's something wrong?

I am still under the status of 'watching and waiting' for GVHD. I am being closely monitored so they can take appropriate action at first sign of any organ attack. Today had a really bad heart burn, which just came from nowhere and had me shouting out in pain. They strapped me up to an ECG monitor to check my heart was still in full working order. Which of course it was. I swallowed a huge mouthful of the thick sloopy aniseed stuff (hospital version of gaviscon) and within 40 minutes things had calmed down. I hope to god GVHD doesn't attack my digestive tract, as that would be very painful to deal with.

Scalp starting to hurt and get sore. I notice too the first sign of my hair starting to fall out again. I had hoped I would pass this side effect by, but seems that yet again I will be donning a range of cashmere beanies for a couple of months. They tell me that after TBI hair grows back thinner. Though for those of you who know me well, that may not notice much...

Thanks to so many friends and family, near and far, for all your amazing support over the last six months. I know that every ounce has helped me on this long road to recovery. As we turn into Christmas and with 2013 just round the corner, I am feeling very positive about the future. I know I am still in the minefield and chance I may trip up a couple of times as time goes on, but with your continuing support...I just got a good feeling inside.

Much love this Christmas Eve. tch x

ps. check this link out: http://youtu.be/GwRRebTOvWY thanks havelock walkers...


5 comments:

jules said...

Sounding good then let's hear it for those lovely babes and hope they enjoy their first Xmas with their fabulous new host!
Thnking of you xx

Anonymous said...

Merry Christmas Tessa. You are awesome! Anyone with flu who's been feeling a bit sorry for themselves should read your blog. We're thinking of you everyday and often and send our best wishes to you & Luigi for a strong, healthy and happy new year. Lynn & Phil xx
Hastings is waiting for you x

Lisa said...

Merry Christmas Tessa! Those baby cells certainly sound keen!! Hurrah - they clearly love you as do we all. Your Xmas Card is as gorgeous as ever. All good wishes from sunny - yes really! - Norfolk xxx

Unknown said...

Hi Tessa, We are back from our break to a very wet Nottingham with a river that has burst its bank in many places!So happy you managed to dodge the terrible twins and with the strength you're showing i'm sure those baby cells will find it hard to resist you! All our love and hugs as always Kate, Jimmy and Team Harlow xxxxx

Unknown said...

Great to hear your positive vibes. All of us with minor complaints feel correctly chastened by your blog. Best Christmas and New Year wishes, stay strong stay safe. love ianx