Ciao tutti,
Sorry such along time for blog to appear...I'd like to say its because I have been having a ball, but sadly, that's not true. I am exhausted most of the time. Spend too much time in bed sleeping (least that's what the hospital say) and when I am up and dressed I just get whacked out really easily. I have been doing small domestic chores: a little bit of ironing one day (I find ironing very relaxing...seriously) 15 minutes in the garden pruning - that gave me great pleasure - over a couple of days. Emailing short messages, paying bills, walking up and down stairs to try and strengthen my leg muscles, which are still ridiculously weak. I am in Hop Clinic two or three days a week. The clinic sessions really wipe me out: X-rays, intravenous fluids, blood tests etc and a lot of hanging about in between treatments. They really are pigs-of-a-day. I get home normally between five and six and just go straight to bed.
So that has been my life really since my last blog. Slow and steady and still painful with my continuing bladder infection. I feel guilty about spending so much time in bed. But it is very easy just to pull the duvet high and fall asleep. The hospital say iTs chronic fatigue syndrome and the less i do, the harder its going to get to do anything. so I know I have to make a bit more of an effort to engage with the world. But blimey, its hard work!
This week though I have at last started to see some people, which has been great and taken me out of my little world. Very therapeutic. But very tiring. Thanks to those people who have come by, I have enjoyed your company big time.
It's 8pm now and I am already in bed (so cosy!). Tomorrow I have clinic. Have to be there for 10am. Tomorrow too they might have to re-admit me. My kidneys have been playing up and not working properly. I have been drinking like a fish, 2 /3 liters of fluid a day (that's hard work) but it doesn't seem to have done the trick. One of the immune suppressant drugs they have me on is very toxic for the kidneys. It seems mine are taking a battering; so I may have to go in for 48 hours or so of intravenous liquids...not happy about this. But will just have to grin and bear it if it is the case.
That's all for now. Wish I had the energy to write more and to write better. I guess it will come back at some point. If I am at home this weekend I have a plan to do some more pruning. Fingers crossed. Big hallo and love to both hemispheres. And hopefully get some more visitors round very soon. tch xxx
PS Gill, great to get your message. Am unable to reply as this blog doesn't seem to have that facility. If you would like to email more, please go to my website, www.tessaholmes.com and send me a message from there, that way I can reply to you. Forty years...
9 comments:
Lovely Tessa,every day you're still on the outside is massive so stop beating yourself up!!! Hopefully the weather will pick up now and you will be able to enjoy more time outside:) I'm down from the 20th for a week so would be great if I can see you? Keep getting stronger love and hugs always Kate xxx
Dealing with all the consequences of treatment is clearly a long and painful business and you must treasure those pruning moments - as well as the duvet snuggles.As spring really gets going the prospect of doing a little bit more may feel a bit easier - my daffs are barely cracking their buds - so spring is clearly not properly sprung yet! Lots of love Lisa xx
Good to hear you are still at home, hope some strength starts to return soon. Enjoy the duvet dsys ! Last night in Oz will be in touch when I get home. Lots of love x x
Cor Blimey! I suppose I know what the hossie means but it seems to me that you you are doing phenomenal amounts of hard work every day and have been doing for months (just in case you think you haven't achieved anything). Anyway sweetie, I hope you're not back inside but also hope you know spring is waiting for you.It is still FREEZING down here. We had Brazilians here for the w/e and had to swaddle them in duvets during the day. Hope to see you soon. Much love, Tina xxxx
Hi Tess, the are right the less you do, try a walk around the circle outside your house everyday! Just a little exercise at a time and you will feel energised but it takes time. It sounds as if you are trying so good on y'a. Hope hosp goes well and you are not admitted. As always love and positive vibes x x P
So good to read your blog today. It might seem your not getting on quick enough but with time, all will be resolved and life will improve.Did my first stall at Newark last week. It took 5 hours to get there and it was chaotic in the begin with but at the end of the days trading I made a profit. I've got to reinvent myself again! but Hey! I,m going for it.Give yourself a break and cwych up as much as you like. Good Luck with all your treatments ect. love u loads. KXXX
Ciao Tessa...da quello che scrivi io direi due passi avanti e uno indietro..! Avanti cosi' e vedrai passo dopo passo il mese prossimo potrai raccontare della tua ripresa fisica. Aspettiamo tutti quel giorno! Un abbraccio. Graziella
Been eating chips on the beach today - horray! Hoping you'll have the strength to join us before too long. So So So So good that you're living at home, 100pc transplanted. This is joyful.
Big Love, get rested and good luck with the kidney treatment.
Planning our Race For Life theme this year. cops and robbers apparently. everyone wants to go as Cagney and Lacey!
sarah x x x
Driving through our mountains last week, I looked to the left and the black scars of Bog fires were evident, to the right was the remnants of our recent snow. It is surely the strangest spring ever. Waking from a coma it would be hard guess the time of year! Take your time my dear Tess, your spring will return, it might just be a bit later than usual. Ianx
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